Category Archives: Fighting Cancer

New theme song

Move over, MJ. Here’s the Thriller’s new anthem:

 

The vocal cord repair surgery didn’t happen. Turns out both of his vocal cords are paralyzed — not just the one. So if the injection pushed one cord towards the center, it would have cut off half his air. If both were pushed to the center without his being able to retract them, well…yeah. Not so good.

However — we still have three remaining Opdivo treatments that will hopefully lessen the cancer’s buildup around the nerves that control his vocal folds.

We don’t lose hope around here, y’know. He gets knocked down, but he gets up again. You are never gonna keep him down.

Aaand now you’re singing it. :-D

Love to you all once again,

#teamthriller

Fast-tracked II

I don’t know whether he called in a favor, pulled rank, traded baseball cards or flashed that million-dollar smile, but somehow, Dr. V. turned the 2nd of October into this coming Thursday.

The Thriller will have medialization laryngoplasty next week, either by injection or implant, to hopefully alleviate the suffering he’s endured on account of his left vocal fold paralysis. (Be sure to check out the before-and-after video clips at the bottom of the page.)

We don’t know what this will mean in the long run, but our hope is that he will finally be able to cough and clear his throat properly so he can regain some energy and return to his daily routine. As it stands now, he has very little appetite and must spend a large part of the day confined, as moving around stirs up congestion he’s unable to clear.

As has happened on a couple of occasions during this odyssey, we’ll be frustrated and disappointed, only to be pushed to the surface again by a hopeful turn of events. This definitely qualifies as one of those moments. Thumbs up to the Amazing Velcheti, who used his magic to somehow make a hole in Dr. Bryson’s busy surgery schedule, and especially to you, fiends, for holding us up in thought, words and prayer.

Much love,

#teamthriller   #prayforhouston

Thunderbirds are go, regardless

Well, the Thriller wasn’t chosen for the clinical trial. It was a random selection process; they put his name in the hat and drew someone else’s. Boo.

A small setback, but I swear the man is made of titanium. He processed his disappointment, and now he’s ready to tackle the Opdivo treatment without the added experimental drugs. Today is the day — off to Cleveland this morning to begin.

We are kept afloat by all your support. A special shout goes to my sister Mavis, who has in almost every other way dropped her own life to be there for ours. That’s something you never pay back, because the cost is too high. When you look up information about someone with the spiritual gift of service, her picture is there.

And thanks to all of my fiends who subscribe to this little blog about nothing. You’re the beast! I will keep you posted on the Opdivo progress.

Much love,

#TEAMTHRILLER

Fast-tracked

A quick update for you, fiends.

Thursday afternoon, the Clinic called us and said that the liver biopsy for the clinical trial was set for the 24th, and that we should come in the day before to get all the papers signed and lab work done. Zoom! And here we thought it would be up to three weeks before we heard anything.

Now the remaining puzzle piece is whether or not he is chosen to get the Opdivo + the experimental drugs, or just the Opdivo alone. We’ll find that out on or before the 29th, when his first treatment is scheduled. We are on top of this. Laissez les freaking bon temps rouler. :-D

Progress for #teamthriller

The way forward

It might be a little hazy at this point, but our resolve is stronger than ever to press on. After yesterday’s third chemo treatment not going at all as planned, the Thriller has a decision to make.

We arrived at the Clinic and reported to the vampires as usual, so he could get his IV started. Like clockwork, we went directly to the 3rd floor and checked in at the desk for his appointment with Erin, the oncologist’s assistant. After waiting a bit, they called his name, and we went down the same hallway to the same exam room. All seemed as it should be — until the door opened, and in walked Dr. Velcheti himself. We knew something was up.

Unfortunately, Monday’s CT scan revealed more cancer; this time, in his liver. Despite drenching him in carboplatin and pemetrexed twice in the last 6 weeks, the tumors still grew. Chemotherapy was now off the table. I wasn’t looking at Michael at that point in the conversation, as I was trying to keep from crab-walking on the ceiling. What do we do now?

Dr. V. told us about a clinical trial involving a combination of two drugs (I can’t remember their mile-long names at the moment) in pill form, paired with a regimen of IV infusions of the drug Opdivo — a relatively new treatment for several types of cancer. Opdivo alone is the standard treatment for patients with advanced NSCLC for whom chemo didn’t work, but this study involves the other two drugs. Therein lies the choice.

Do we start the Opdivo next week, or choose the clinical trial and possibly wait up to 25 days to begin? And it’s not just the wait; at least two biopsies have to happen, before and after treatment. It was all so much information to take in, I can’t recall everything without looking at the paperwork they sent home with us — which we decided to pass on studying last night in favor of relaxation.

When we went to bed, I think he was leaning heavily towards going for the clinical trial. As he’s still asleep, I’m not sure if he’s changed his mind or not. We’ll find out today and make the call, one way or the other.

So, more travels on different roads, leading to who knows where. Was it this hard for Odysseus? :-/  Regardless, I’ll keep you posted as we go — hopefully with some great news.

#teamthriller